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Voices from the front line in rare disease

Voices from the front line in rare disease

Online patient communities have become a vital resource for rare disease patients, and pharma is coming round to the idea of engaging with them for real-world data.

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Reuters Pharma Barcelona April 2023

Reuters Pharma Barcelona 2023

The Reuters Pharma 2023 event is live in Barcelona and pharmaphorum is on site to provide readers with rolling coverage of the speakers and concepts as unfolds over the next few days.

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Patient Recruitment for Rare Disease Trials Summit banner image
Partner Content

Patient Recruitment for Rare Disease Trials Summit

Recruiting patients for rare disease trials is akin to finding a needle in a haystack, with challenges such as geographical dispersion, low awareness, and limited eligible patient pools.