Articles
Celebrating 30 years of the Orphan Drug Act and NORD

Celebrating 30 years of the Orphan Drug Act and NORD

Peter L. Saltonstall shares the progress of rare disease patient advocate NORD over the last 30 years, including the introduction of the Orphan Drug Act. The year 2013 marks a dual anniversary of great significance to the rare disease community: on January 4, 1983, President...

Articles
How I became part of the Quantified Self movement

How I became part of the Quantified Self movement

Jim Dayton shares his personal views on the increase in keeping track of one’s own health data, known as the Quantified Self movement, by using medical devices and mhealth apps. I am part of the Quantified Self movement. Which means: I am a person who believes that tracking one’s own...

Articles
Patient perspective interview series: overview

Patient perspective interview series: overview

Following the theme of patients this month, Rebecca Aris summarises pharmaphorum’s patients perspective interview series to date and highlights some common thoughts. Having spoken with many different patients on their experiences with the healthcare industry and on what...

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Oncology

Oncology
Cancer cell

Building a Phase I oncology centre

The question is not whether an institution should ultimately develop Phase Ia capability. It is when the organisation is ready.

Patients

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