Living with LHON: Support and friendship fights fear and iso...

When someone is told they have a rare disease – particularly one like LHON that strips people of their sight — it can be an isolating experience.

Finding the roadmap for living with LHON

Every patient faces their own journey through life, learning about their condition with the best tools available to them.

LHON diagnosis: Opening peoples’ eyes to the invisible suffe...

Maryse Roger has firsthand experience of Leber’s hereditary optic neuropathy (LHON), having first assisted her two brothers as their sight deteriorated and then leading the care of her son

Raising awareness of LHON for Rare Disease Day 2018

Shedding light on LHON: the rare blindness affecting young a...

People in Europe with this little-known and frequently misdiagnosed condition need faster diagnosis.