Delivering change through better rare disease communications

OPEN Health’s Richard Jones, Gemma Allen and Charlotte Richards discuss how pharma can utilise tools, channels and stakeholders to deliver change and enable better outcomes.

Takeda signs $882m rare disease alliance with Oxford biotech...

Bringing social media listening into R&D

After her daughter was diagnosed with Prader-Willi syndrome, Maria Picone used social media listening and AI analytics to find out the best ways to manage the rare disease.

The life-changing burden of my rare disease

I was first diagnosed with a rare autoimmune disease, Sjogren’s Syndrome, about ten years ago, after several years of medical struggles and misdiagnosis.

Girl loses High Court battle over NICE review of BioMarin’s ...

Pfizer’s EU Vyndaqel okay ‘sets up $1.5bn sales next year’