Amanda Barrell speaks to the ABPI deputy chief scientific officer Sheuli Porkess and the NIHR’s Simon Denegri at the Pioneering Partnerships conference to find out how they are helping to m
After being diagnosed with a rare non-malignant brain tumour, Claire Snyman has dedicated herself to inspiring people to put their health in their own hands.
When he was first told he had LHON, a rare genetic disease that would rob him of his sight, James Ferguson’s first thought was that it would also rob him of his identity.
