Patients Views & Analysis

Views & Analysis

How accidental advocacy is amplifying the GM1 voice

Rare disease families need to stand up and be counted if they want things to change said mum and advocate Christine Waggoner.

Patients

Inclusive research and tackling health inequalities

Health at every size – making medicine weight inclusive

UK-based doctor, Dr Natasha Larmie is on a mission to make medicine weight inclusive.

Views & Analysis

Rare disease insights from the patient community

To help pharma companies understand what life is really like for patients with a rare disease, a new resource has been released to coincide with Rare Disease Day 2021.

Views & Analysis

Building a better future for people with rare diseases in al...

How has rare disease care changed over the last few years? And what might we expect from the next five?

Views & Analysis

Common but not normal: It’s time to talk about maternal ment...

As part of our Patients Insights series, the founder and CEO of Motherhood Understood shares her experi

Views & Analysis

Ipsen’s John Chaddock on making neurotoxins a priority for h...

Injected neurotoxins can be incredibly potent in treating spasticity from neurological diseases, but the field doesn’t always get the attention it needs. Ipsen’s John Chaddock tells u

How accidental advocacy is amplifying the GM1 voice

Health at every size – making medicine weight inclusive

Rare disease insights from the patient community

Building a better future for people with rare diseases in al...

Common but not normal: It’s time to talk about maternal ment...

Ipsen’s John Chaddock on making neurotoxins a priority for h...

The long-delayed promise of the microbiome, with Sam Possemi...

How to meet your physicians where they are online

Views & Analysis

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