Strength in numbers: Because having a rare disease isn’t rareRare doesn’t mean insignificant – in fact more people live with a rare disease than with cancer and Share XStrength in numbers: Because having a rare disease isn’t rarehttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/global-genes-rare-diseases/
The patient perspective on advocacyGrowing up with the shadow of Huntington’s disease (HD) means Seth Rotberg understands the importance of peer support Share XThe patient perspective on advocacyhttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/inspire-patient-advocacy-seth-rotberg/
How pharma can support doctors who treat rare diseasesWhere do doctors see patients with rare diseases, how do they keep up with treatment advances and what Share XHow pharma can support doctors who treat rare diseaseshttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/orphan-drug-marketing-medpanel/
Living with LHON: Adapting to sight loss at 15 years oldWhen faced with a devastating diagnosis, a family has two choices – to give up or make it Share XLiving with LHON: Adapting to sight loss at 15 years oldhttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/living-lhon-sight-loss-santhera/
A lifeline for rare disease patientsFor more than 25 years Alexion has been blazing a trail in rare diseases, bringing a series of Share XA lifeline for rare disease patientshttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/alexion-sean-richardson-charles-de-wet/
Realising the potential of wearable techSpire Health, a US-based continuous respiration sensing and high-adherence ambulatory monitoring healthcare company, is poised to revolutionise the Share XRealising the potential of wearable techhttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/spire-health-clinical-trial-wearables/
Precision medicine: AZ’s Ruth March on its next stepsAstraZeneca’s senior vice-president and head of precision medicine, research & development, Ruth March, has been central to the Share XPrecision medicine: AZ’s Ruth March on its next stepshttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/astrazeneca-ruth-march-precision-medicine/
Innovating in clinical trial recruitmentClinical trial recruitment is in crisis, with 80% of trials failing to recruit the required number of patients Share XInnovating in clinical trial recruitmenthttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/havas-lynx-faze-clinical-trials/
Company profile: IDEA PharmaWe are in the most competitive period ever for the pharmaceutical industry, characterised by incremental innovation and looming Share XCompany profile: IDEA Pharmahttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/idea-pharma-strategy/
