Patients

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Sarah was born with ADA-SCID but was fortunate to access gene therapy via a clinical trial

NHS trust bids to take license for abandoned gene therapy

An NHS trust has taken the pioneering step of applying to hold the marketing authorisation for a gene therapy for a rare disease that was abandoned by a biotech developer

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Dissatisfaction with NHS ‘at record high’

More than half (52%) of people who participated in a major survey of the GB public were dissatisfied with the NHS, as staff shortages, strikes, and record waiting lists ta

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NHS will expand use of waiting list-busting AI after pilot

Artificial intelligence software designed to tackle missed appointments and reduce waiting lists will see its use by the NHS ramp up after a successful pilot deployment.

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ALS body takes digital approach to clinical trials access

A non-profit organisation representing the amyotrophic lateral sclerosis (ALS) community in the US is taking a digital approach to connecting patients with suitable clinic

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Clinigen educates on early access to rare disease therapies

On Rare Disease Day, Clinigen has launched a campaign to try to encourage doctors and patients to explore how they can get early access to investigational therapies.

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Study rings warning bell over cancer therapy access in UK

Studies have suggested that cancer survival rates in the UK are lagging behind other countries by around 10 to 15 years because of lower rates of chemotherapy and radiothe