patient voice Archives -

The-Value-of-Patient-Engagement-1200x675

Patients increasingly want to be more involved in their healthcare, decisions about it and research towards its improvement,

Incorporating the patient voice from clinical development to commercialisation

https://pharmaphorum.com/patients/incorporating-the-patient-voice-from-clinical-development-to-commercialisation/

Views & Analysis/ Views and analysis

Listening to the patient voice: Why developing new dementia treatments is everyone’s job

Amanda Barrell Alzheimer's disease, Alzheimer's Research UK, dementia, patient voice 0 Comment

Developing life-changing treatments for dementia is a team effort that takes commitment from all involved, from charities and

Listening to the patient voice: Why developing new dementia treatments is everyone’s job

https://pharmaphorum.com/views-and-analysis/listening-to-the-patient-voice-why-developing-new-dementia-treatments-is-everyones-job/

Patients/ Views & Analysis/ Views and analysis

Are your internal processes drowning out the patient voice?

Amanda Barrell ABPI, patient centricity, patient engagement, patient voice 0 Comment

Greater patient involvement is among the stated aims of the ABPI, so why do companies up and down

Are your internal processes drowning out the patient voice?

https://pharmaphorum.com/views-analysis-patients/internal-processes-drowning-patient-voice/

Patients/ Views & Analysis/ Views and analysis

Success comes from listening to and working with patients

Amanda Barrell Parkinson's, patient centricity, patient voice, UCB 0 Comment

With the current mainstay of Parkinson’s treatment being more than 50 years old and doing nothing to slow

Success comes from listening to and working with patients

https://pharmaphorum.com/views-analysis-patients/success-comes-from-listening-to-and-working-with-patients/

Patients/ Views & Analysis/ Views and analysis

Listening to the myeloma patient voice is difficult – but it still needs to be done

Amanda Barrell myeloma, Myeloma UK, patient voice 0 Comment

Over the last decade, treatments for the blood cancer myeloma have come on in leaps and bounds –

Listening to the myeloma patient voice is difficult – but it still needs to be done

https://pharmaphorum.com/views-analysis-patients/listening-myeloma-patient-voice-difficult-but-needs-to-be-done/

Molecular, DNA and atom model in science research lab

Market Access/ Patients/ Views & Analysis/ Views & Analysis/ Views and analysis

Rare Disease Day: How the patient voice can tear down barriers

Amanda Barrell access to new medicines, clinical trials, drug development, patient engagement, patient voice, Rare Disease Day, Rare diseases, unmet need 0 Comment

To have any impact, patient engagement needs to start with the drug development pathway, not at the point

Rare Disease Day: How the patient voice can tear down barriers

https://pharmaphorum.com/views-and-analysis/rare-disease-day-how-the-patient-voice-can-tear-down-barriers/

Patients/ Views & Analysis/ Views and analysis

Increasing patient involvement in research to tackle unmet need

Amanda Barrell patient voice, product development, rare disease, research pathway, unmet need, Xeroderma pigmentosum 0 Comment

It could be said that there is no greater unmet need than a complete and absolute absence of treatment

Increasing patient involvement in research to tackle unmet need

https://pharmaphorum.com/views-and-analysis/increasing-patient-involvement-research-tackle-unmet-need/

Patients/ Views & Analysis/ Views and analysis

An echo through brain cancer’s empty pipeline

Amanda Barrell brain cancer, brain tumour, patient voice 0 Comment

Brain tumours kill more people aged under 40 than any other cancer, yet there have been no new

An echo through brain cancer’s empty pipeline

https://pharmaphorum.com/views-analysis-patients/brain-tumours-empty-pipeline/

Patients/ Views & Analysis/ Views and analysis

Listening to the patient voice: severe sickness in pregnancy

Amanda Barrell Hyperemesis Gravidarum, patient voice, pregnancy, severe sickness in pregnancy 0 Comment

With new knowledge comes new possibilities, but only if the patient voice isn’t drowned out by stigma and

Listening to the patient voice: severe sickness in pregnancy

https://pharmaphorum.com/views-analysis-patients/listening-to-the-patient-voice-severe-sickness-in-pregnancy/

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