LHON Archives -

Being diagnosed with a rare disease is often a bolt from the blue, and while each person’s journey

Living with LHON: Individual struggles, common challenges

https://pharmaphorum.com/disease-spotlight/living-with-lhon-individual-struggles-common-challenges/

Disease Spotlight/ LHON Main/ Patients/ Views & Analysis/ Views and analysis

Living with LHON: Sight loss won’t stop James from seeing the world

Amanda Barrell LHON, Santhera 0 Comment

When he was first told he had LHON, a rare genetic disease that would rob him of his

Living with LHON: Sight loss won’t stop James from seeing the world

https://pharmaphorum.com/views-analysis-patients/living-with-lhon-sight-loss-wont-stop-james-from-seeing-the-world/

Disease Spotlight/ LHON Main/ Views and analysis

Living with LHON: Support and friendship fights fear and isolation

Amanda Barrell Arbeitskreis LHON, Christiane Trenkner, Leber's hereditary optic neuropathy, LHON, Santhera 0 Comment

When someone is told they have a rare disease – particularly one like LHON that strips people of

Living with LHON: Support and friendship fights fear and isolation

https://pharmaphorum.com/disease-spotlight/living-with-lhon-support-and-friendship-fights-fear-and-isolation/

Disease Spotlight/ LHON Main/ Views and analysis

Living with LHON: Adapting to sight loss at 15 years old

Amanda Barrell Ana Velosa, LHON, Santhera 0 Comment

When faced with a devastating diagnosis, a family has two choices – to give up or make it

Living with LHON: Adapting to sight loss at 15 years old

https://pharmaphorum.com/disease-spotlight/living-with-lhon-adapting-to-sight-loss-at-15-years-old/

Disease Spotlight/ LHON Main/ Views and analysis

Drawing strength from growing up with LHON

Amanda Barrell Fredrik Guzmán Lindemark, LHON, Santhera 0 Comment

With a successful music career already in the bag, 24-year-old Fredrik Guzmán Lindemark is now making his mark

Drawing strength from growing up with LHON

https://pharmaphorum.com/disease-spotlight/drawing-strength-from-growing-up-with-lhon/

LHON Main

Wegweiser für ein Leben mit LHON

Adam Jeffery ASANOL, LHON, Pedro García Recover 0 Comment

Wegweiser für ein Leben mit LHON Jeder Patient geht seinen eigenen Weg durchs Leben und versucht, mit den

Wegweiser für ein Leben mit LHON

https://pharmaphorum.com/disease-spotlight/lhon-main/wegweiser-fur-ein-leben-mit-lhon/

Disease Spotlight/ LHON Main/ Views and analysis

New support group will help families adapt to LHON

louise.bellamy@pharmaphorum.com blind, Francesca Müeller, LHON, Santhera, sight loss 0 Comment

Personal experience of helping her son juggle sight loss and adolescence means Francesca Müeller understands all too well

New support group will help families adapt to LHON

https://pharmaphorum.com/disease-spotlight/lhon-main/new-support-group-will-help-families-adapt-to-lhon/

Disease Spotlight/ LHON Main/ Views and analysis

Adaptations and positivity are key to living in the light with LHON sight loss

louise.bellamy@pharmaphorum.com ABBA, Krister Inde, LHON, Santhera, visual rehabilitation 0 Comment

It took 30 years for Krister Inde to find out the visual impairment that developed when he was

Adaptations and positivity are key to living in the light with LHON sight loss

https://pharmaphorum.com/disease-spotlight/adaptions-and-positivity-are-key-to-living-in-the-light-with-lhon-sight-loss/

Disease Spotlight/ LHON Main/ Views and analysis

Living with LHON: Blindness doesn’t mean losing sight of your dreams

louise.bellamy@pharmaphorum.com adapting to disability, delayed diagnosis, LHON, patient engagement, peer support, World Sight Day 0 Comment

Losing your sight is every bookworm’s worst nightmare, but former English teacher Paula Morandi has not let her

Living with LHON: Blindness doesn’t mean losing sight of your dreams

https://pharmaphorum.com/disease-spotlight/living-with-lhon-blindness-doesnt-mean-losing-sight-of-your-dreams/

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