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LHON

Wegweiser für ein Leben mit LHON

Wegweiser für ein Leben mit LHON

Wegweiser für ein Leben mit LHON Jeder Patient geht seinen eigenen Weg durchs Leben und versucht, mit den

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Wegweiser für ein Leben mit LHON

https://pharmaphorum.com/disease-spotlight/lhon-main/wegweiser-fur-ein-leben-mit-lhon/

New support group will help families adapt to LHON

New support group will help families adapt to LHON

Personal experience of helping her son juggle sight loss and adolescence means Francesca Müeller understands all too well

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New support group will help families adapt to LHON

https://pharmaphorum.com/disease-spotlight/lhon-main/new-support-group-will-help-families-adapt-to-lhon/

Adaptations and positivity are key to living in the light with LHON sight loss

Adaptations and positivity are key to living in the light with LHON sight loss

It took 30 years for Krister Inde to find out the visual impairment that developed when he was

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Adaptations and positivity are key to living in the light with LHON sight loss

https://pharmaphorum.com/disease-spotlight/adaptions-and-positivity-are-key-to-living-in-the-light-with-lhon-sight-loss/

Living with LHON: Blindness doesn’t mean losing sight of your dreams

Living with LHON: Blindness doesn’t mean losing sight of your dreams

Losing your sight is every bookworm’s worst nightmare, but former English teacher Paula Morandi has not let her

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Living with LHON: Blindness doesn’t mean losing sight of your dreams

https://pharmaphorum.com/disease-spotlight/living-with-lhon-blindness-doesnt-mean-losing-sight-of-your-dreams/

Imparare a convivere con la LHON

Imparare a convivere con la LHON

Ogni paziente affronta il viaggio della vita a modo proprio, imparando a conoscere la malattia al meglio delle

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Imparare a convivere con la LHON

https://pharmaphorum.com/views-and-analysis/imparare-a-convivere-con-la-lhon/

Finding the roadmap for living with LHON

Finding the roadmap for living with LHON

Every patient faces their own journey through life, learning about their condition with the best tools available to

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Finding the roadmap for living with LHON

https://pharmaphorum.com/disease-spotlight/finding-the-roadmap-living-with-lhon/

LHON diagnosis: Opening peoples’ eyes to the invisible suffering of LHON patients

Maryse Roger has firsthand experience of Leber’s hereditary optic neuropathy (LHON), having first assisted her two brothers as

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LHON diagnosis: Opening peoples’ eyes to the invisible suffering of LHON patients

https://pharmaphorum.com/views-analysis-digital/lhon-diagnosis-invisible-suffering-lhon-patients/

Accelerating access for rare disease patients – the need to harmonise Europe’s regulation

Accelerating access for rare disease patients – the need to harmonise Europe’s regulation

Santhera is putting patient needs at the heart of its rare disease speciality business. Chief Executive Officer Thomas Meier, PhD, talks about the company’s mission – and how rationalising Europe’s drug review systems could help patients.

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Accelerating access for rare disease patients – the need to harmonise Europe’s regulation

https://pharmaphorum.com/views-analysis-patients/accelerating-access-rare-disease-patients/

Living with LHON: Achieving your dreams in the dark

Living with LHON: Achieving your dreams in the dark

When Fabrizio Sottile went blind at the age of 17, he thought his dreams of becoming a world-class swimmer were over. But he wasn’t about to let Leber’s hereditary optic neuropathy (LHON) stand in his way, and he made his first appearance as part of Italy’s Paralympic team in 2016, aged 23.

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Living with LHON: Achieving your dreams in the dark

https://pharmaphorum.com/views-and-analysis/mitochondrial-lhon-living-with-lhon-achieving-your-dreams/

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