Living with LHON: Individual struggles, common challengesBeing diagnosed with a rare disease is often a bolt from the blue, and while each person’s journey Share XLiving with LHON: Individual struggles, common challengeshttps://pharmaphorum.com/disease-spotlight/living-with-lhon-individual-struggles-common-challenges/
Living with LHON: Sight loss won’t stop James from seeing the worldWhen he was first told he had LHON, a rare genetic disease that would rob him of his Share XLiving with LHON: Sight loss won’t stop James from seeing the worldhttps://pharmaphorum.com/views-analysis-patients/living-with-lhon-sight-loss-wont-stop-james-from-seeing-the-world/
Living with LHON: Support and friendship fights fear and isolationWhen someone is told they have a rare disease – particularly one like LHON that strips people of Share XLiving with LHON: Support and friendship fights fear and isolationhttps://pharmaphorum.com/disease-spotlight/living-with-lhon-support-and-friendship-fights-fear-and-isolation/
Living with LHON: Adapting to sight loss at 15 years oldWhen faced with a devastating diagnosis, a family has two choices – to give up or make it Share XLiving with LHON: Adapting to sight loss at 15 years oldhttps://pharmaphorum.com/disease-spotlight/living-with-lhon-adapting-to-sight-loss-at-15-years-old/
Drawing strength from growing up with LHONWith a successful music career already in the bag, 24-year-old Fredrik Guzmán Lindemark is now making his mark Share XDrawing strength from growing up with LHONhttps://pharmaphorum.com/disease-spotlight/drawing-strength-from-growing-up-with-lhon/
Wegweiser für ein Leben mit LHONWegweiser für ein Leben mit LHON Jeder Patient geht seinen eigenen Weg durchs Leben und versucht, mit den Share XWegweiser für ein Leben mit LHONhttps://pharmaphorum.com/disease-spotlight/lhon-main/wegweiser-fur-ein-leben-mit-lhon/
New support group will help families adapt to LHONPersonal experience of helping her son juggle sight loss and adolescence means Francesca Müeller understands all too well Share XNew support group will help families adapt to LHONhttps://pharmaphorum.com/disease-spotlight/lhon-main/new-support-group-will-help-families-adapt-to-lhon/
Adaptations and positivity are key to living in the light with LHON sight lossIt took 30 years for Krister Inde to find out the visual impairment that developed when he was Share XAdaptations and positivity are key to living in the light with LHON sight losshttps://pharmaphorum.com/disease-spotlight/adaptions-and-positivity-are-key-to-living-in-the-light-with-lhon-sight-loss/
Living with LHON: Blindness doesn’t mean losing sight of your dreamsLosing your sight is every bookworm’s worst nightmare, but former English teacher Paula Morandi has not let her Share XLiving with LHON: Blindness doesn’t mean losing sight of your dreamshttps://pharmaphorum.com/disease-spotlight/living-with-lhon-blindness-doesnt-mean-losing-sight-of-your-dreams/
