Living with LHON: Support and friendship fights fear and isolation
Arbeitskreis LHON, Christiane Trenkner, Leber's hereditary optic neuropathy, LHON, Santhera
0 Comment
Leber’s hereditary optic neuropathy
Finding the roadmap for living with LHON
ASANOL, Leber's hereditary optic neuropathy, LHON, patient centricity, Pedro García Recover, rare disease
0 Comment
LHON diagnosis: Opening peoples’ eyes to the invisible suffering of LHON patients
Leber's hereditary optic neuropathy, LHON, LHON diagnosis, LHON patient group, Maryse Roger, Ouvrir Les Yeux, rare disease
0 Comment
Raising awareness of LHON for Rare Disease Day 2018
blindness, Leber's hereditary optic neuropathy, LHON, patients, rare disease
0 Comment
As Rare Disease Day approaches on 28 February, Santhera has created an infographic explaining the signs and symptoms of the rare disease Leber’s hereditary optic neuropathy (LHON), a progressive eye disease that results in blindness.
Shedding light on LHON: the rare blindness affecting young adults
blindness, Leber's hereditary optic neuropathy, LHON, patients, rare disease
0 Comment
LHON is a frequently misdiagnosed condition that needs faster diagnosis.