R&D Strength in numbers: Because having a rare disease isn’t rar... Rare doesn’t mean insignificant – in fact more people live with a rare disease than with cancer and AIDS combined.
R&D The patient perspective on advocacy Growing up with the shadow of Huntington’s disease (HD) means Seth Rotberg understands the importance of peer support and credible information.
R&D How pharma can support doctors who treat rare diseases Where do doctors see patients with rare diseases, how do they keep up with treatment advances and what can pharmaceutical companies do to help?
R&D Living with LHON: Adapting to sight loss at 15 years old When faced with a devastating diagnosis, a family has two choices – to give up or make it their mission to adapt and carry on.
R&D A lifeline for rare disease patients For more than 25 years Alexion has been blazing a trail in rare diseases, bringing a series of life-changing medicines to market.
R&D Realising the potential of wearable tech Spire Health, a US-based continuous respiration sensing and high-adherence ambulatory monitoring healthcare company, is poised to revolutionise the wearable tech space for use in clinical s
News NHS "isn't delivering equitable care for rare diseases" A Genetic Alliance UK report claims the NHS is failing to meet the needs of many of the 3.5 million people in the country who live with rare diseases.
Sales & Marketing Sponsored Using AI-driven synthetic personas to take your insights fur... As AI continues to reshape the healthcare landscape, pharma teams are beginning to leverage synthetic personas.
