Informed patients: evolving healthcare, clinical trials and medical information

Overview

Patients are more informed than ever about their conditions and what is available for them to improve their quality of life.

The healthcare sector is increasingly focused on understanding patient needs and engaging them in the clinical development and medical information process. Therefore, it is paramount to create patient-focused educational content using a range of communication channels and digital tools.

However, do we take any time to think like a patient and, by doing so, understand their evolving needs and how this will affect the development of clinical trials and other healthcare educational initiatives?

This pharmaphorum webinar, held in association with Plenum and mdgroup, took place on Wednesday 5^th February from 14:00-15:00 GMT and looked at the impact of patient involvement, from clinical programme design through to launch and post-launch activities.

Focus

Our expert panel discussed:

• What should patient-led communication look like and who will provide it?
• How to best meet patients’ needs during clinical trials
• Which meeting formats and other channels are most relevant to reach the broadest and most appropriate audiences?
• What role will each stakeholder play in the future?

To view the debate on demand, please click here or on the button above or below.

Our Panel

Valeria (Vale) Nicoli-Carr, Vice President Patient Engagement, mdgroup

Vale is responsible at MD Group for developing and managing patient engagement and stakeholder advocacy, to drive the company’s global patient engagement strategy. Previously, Vale led the creation and management of MD Group’s patient services division, patientprimary. patientprimary provides global solutions to reduce the burden of patient participation and maximise clinical trial success. Before working in the pharmaceutical industry, Vale developed an international legal background with a focus on European and International legislation.

Dominic Jack, Senior Medical Director – Neurology & Immunology, Biopharma Global Medical Affairs, Merck

Dominic is a Senior Medical Director in the Neurology and Immunology Franchise in Global Medical Affairs at Merck. He has been responsible for the strategic direction of medical communications around the launch of Mavenclad for patients with relapsing multiple sclerosis. A background in academic immunology and medical writing in a number of leading consulting companies brought him to Merck. Passionate about the positive role of healthcare companies in the provision of medical information and education, Dominic brings the HCP perspective to the Plenum advisors and his belief that fundamental change in the educational journey of HCPs will drive the content and delivery formats that all stakeholders will use to communicate medical information.

Andrew Schorr, Co-Founder, Patient Power

Andrew Schorr is co-founder of PatientPower.info, a major online media channel for cancer patients worldwide.  He has been a pioneer in patient communications and empowerment since 1984. In 1996 he became a patient himself, with leukemia, and has been living well with two cancers because of clinical trials and the latest medicines. Today, Patient Power, with its “patient-powered-journalism” covers cancer medical meetings with live broadcasts for patients and regularly amplifies the voice of patients to industry groups.

Dr Rafael Vidal Pérez, Cardiologist, Clinical Researcher and Social Media Director, University Hospital Coruña

Dr. Vidal Pérez has a degree in Medicine and Surgery from the University of Santiago de Compostela, Valencia, Spain obtaining his degree, with Extraordinary Prize in 2003 and Doctorate Cum Laude in 2013. He also won the prestigious San Nicolás Foundation Graduate Award in 2002 for his academic record, granted by the Royal National Academy of Medicine. He specialised in cardiology, initially at the University Hospital of Santiago de Compostela, as a cardiologist at the Lucus Augusti University Hospital and member of the multidisciplinary cardiac rehabilitation unit and now as a cardiologist, and clinical researcher at the University Hospital in Coruña, Galicia in the north of Spain. He also works on JACC Case Reports as Social Media Director.

He belongs to research groups such as the Barbanza group or the IBERICAN group. He has presented more than 225 papers at international cardiology conferences and to date 25 articles in national and international medical scientific journals, in addition to contributing to the publication of several books. He has participated in the development of several smartphone apps such as ClinicApp or practical ECG. He is a member of the Spanish Society of Cardiology (SEC) and Fellow of the European Society of Cardiology (ESC), as well as a member of several ESC committees such as the e-communication committee as well as some associations such as Acute Cardiovascular Care Association (ACCA) and European Association of Cardiovascular Imaging (EACVI). He is currently a member of the ICT committee of the SEC.

Dominic Tyer, Creative and Editorial Director, pharmaphorum [moderator]

Dominic Tyer is a trained journalist and editor with 19 years of pharmaceutical and healthcare publishing experience. He serves as a contributing editor at pharmaphorum media, which facilitates productive engagement for pharma, bringing healthcare together to drive medical innovation. He is also creative director at the company’s specialist healthcare content consultancy, pharmaphorum connect.