EURORDIS honours Genzyme with rare disease company award

Hannah Blake

pharmaphorum

The largest European rare disease patient organisation, EURORDIS, has awarded Sanofi’s subsidiary, Genzyme, with a Company Award. This award recognizes the outstanding accomplishments of companies dedicated to rare diseases.

Genzyme was honored for pioneering the development and delivery of therapies for rare diseases, its longstanding support of patient organizations, including EURORDIS, as well as initiatives to increase patient access to Genzyme treatments.

“Genzyme has been partnering with patient advocacy organizations globally from our earliest days to be sure the community’s needs and perspectives are always represented within our organization, and the contributions of these organizations remain central to Genzyme and our ability to bring therapies to patients. As we approach Rare Disease Day, a day made possible because of EURORDIS, Genzyme wants to thank all of the patient organizations and communities who work daily to improve the lives of patients with rare diseases. Their pioneering spirit will continue to inspire Genzyme.”

Genzyme’s Head of Rare Diseases, Rogerio Vivaldi, MD.

The award recipients are selected by the EURORDIS Board of Directors, based on over 100 nominations received from EURORDIS members (rare disease patient advocacy groups from all Europe), volunteers and staff, with the aim of promoting leadership and excellence for people living with rare diseases.

“We are honored to acknowledge the commitment and achievements of this year’s recipients of the EURORDIS Awards on the occasion of Rare Disease Day 2013. Each of this year’s ten awardees contributes in their own unique way toward fostering the goals of cooperation embodied in this year’s Rare Disease Day slogan: ‘Rare Disorders without Borders.’ We are proud that the rare disease community is becoming a model for multi-stakeholder partnership and international collaboration as well as for solidarity and unity throughout Europe.”

Yann Le Cam, Chief Executive Officer of EURORDIS.

Rare Disease Day is tomorrow, the 28th February. Keep an eye out for our rare disease patient video and also our write-up of our rare disease Twitter chat from the beginning of the month.

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Reference links:

Sanofi press release

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