Rare Disease Day tweetchat

 

To view a full transcript of the discussion from this #hcsmeu tweetchat held on 28th February 2014 please click here.

During the hour-long tweetchat, we covered the following questions:

 

1) What are the biggest data challenges in understanding rare diseases and how to treat them?

2) Can a balance be struck between patient anonymity and open data for collaboration on rare disease treatment?

3) What can the pharma industry do to better support those living with rare diseases?

 

Please note this tweetchat was completely independent and not sponsored by any external organisation.