With a successful music career already in the bag, 24-year-old Fredrik Guzmán Lindemark is now making his mark as a start-up entrepreneur and investor.
Personal experience of helping her son juggle sight loss and adolescence means Francesca Müeller understands all too well the importance of peer support.
The internet and social media are often heralded as a panacea for rare disease patients and their carers as they seek information, but for some parents it’s face-to-face collaborations and meetings