Santhera

R&D

Living with LHON: Adapting to sight loss at 15 years old

When faced with a devastating diagnosis, a family has two choices – to give up or make it their mission to adapt and carry on.

LHON Main

Diagnostic de la NOHL : sensibiliser le public à la souffran...

Maryse Roger a vécu de près la neuropathie optique héréditaire de Leber (NOHL).

Disease Spotlight

Living with LHON: Adapting to sight loss at 15 years old

When faced with a devastating diagnosis, a family has two choices – to give up or make it their mission to adapt and carry on.

Disease Spotlight

Drawing strength from growing up with LHON

With a successful music career already in the bag, 24-year-old Fredrik Guzmán Lindemark is now making his mark as a start-up entrepreneur and investor.

LHON Main

New support group will help families adapt to LHON

Personal experience of helping her son juggle sight loss and adolescence means Francesca Müeller understands all too well the importance of peer support.

Disease Spotlight