Expediting innovation in the rare disease domainRare diseases affect a fraction of the population – 450 million+ people globally. However, its effects can be Share XExpediting innovation in the rare disease domainhttps://pharmaphorum.com/r-d/views-analysis-r-d/expediting-innovations-in-rare-disease-domain/
Why we need research into the mental health impact of a rare disease diagnosisRare diseases impact between 3.5%-5.9% of the world’s population. For Rare Disease Day, RBW Consulting’s Emma Thorp discusses Share XWhy we need research into the mental health impact of a rare disease diagnosishttps://pharmaphorum.com/views-and-analysis/the-mental-health-impact-of-a-rare-disease-diagnosis/
Building a better future for people with rare diseases in all four UK nationsHow has rare disease care changed over the last few years? And what might we expect from the Share XBuilding a better future for people with rare diseases in all four UK nationshttps://pharmaphorum.com/views-analysis-patients/building-a-better-future-for-people-with-rare-diseases-in-all-four-uk-nations/
Rare disease insights from the patient communityTo help pharma companies understand what life is really like for patients with a rare disease, a new Share XRare disease insights from the patient communityhttps://pharmaphorum.com/views-and-analysis/rare-disease-insights-from-the-patient-community/
The biggest challenges facing rare disease pharma – and how the industry can tackle themAs Rare Disease day 2020 approaches, we take a look at the biggest challenges facing orphan drug developers Share XThe biggest challenges facing rare disease pharma – and how the industry can tackle themhttps://pharmaphorum.com/r-d/views-analysis-r-d/biggest-challenges-rare-disease/
Rare Disease Day: How the patient voice can tear down barriersTo have any impact, patient engagement needs to start with the drug development pathway, not at the point Share XRare Disease Day: How the patient voice can tear down barriershttps://pharmaphorum.com/views-and-analysis/rare-disease-day-how-the-patient-voice-can-tear-down-barriers/
Marking Rare Disease Day, FDA and patient group launch collaborationThe FDA has marked today’s international Rare Disease Day with a number of measures to promote research and Share XMarking Rare Disease Day, FDA and patient group launch collaborationhttps://pharmaphorum.com/news/marking-rare-disease-day-fda-patient-group-launch-collaboration/
