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CSL Vifor plans UK launch after NICE backs rare disease drug Tavneos

Astellas files menopause drug fezolinetant in US, setting up Feb verdict

Frontiers Steering Committee spotlight: Megan Coder

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bluebird unveils $2.8m price for gene therapy Zynteglo on FDA approval

patient registry

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R&D/ Views & Analysis/ Views and analysis

Tay-Sachs and rare disease registries – the Health Heroes podcast

Dominic Tyer Health Heroes, kantar health, patient registry, podcast, Rare diseases 0 Comment

Episode four of Kantar Health’s Health Heroes podcast tackles pharma’s rare disease challenges, the role of patient registries

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Tay-Sachs and rare disease registries – the Health Heroes podcast

https://pharmaphorum.com/r-d/disease-registries-kantar-health-podcast/

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Digital/ News/ News

COVID-19 patient registry could inform lockdown exit strategy

Richard Staines coronavirus, COVID-19, digital health, IQVIA, ObvioHealth, patient registry 0 Comment

Recruitment for a patient registry app for COVID-19 is underway, which could help governments find their way out

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COVID-19 patient registry could inform lockdown exit strategy

https://pharmaphorum.com/news/covid-19-patient-registry-aims-to-h/

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Patient Engagement Event - a real world snapshot, beyond the talk

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