Being diagnosed with a rare disease is often a bolt from the blue, and while each person’s journey is different, there are common challenges that bind patient communities together.
When he was first told he had LHON, a rare genetic disease that would rob him of his sight, James Ferguson’s first thought was that it would also rob him of his identity.
With a successful music career already in the bag, 24-year-old Fredrik Guzmán Lindemark is now making his mark as a start-up entrepreneur and investor.