Patients/ R&D/ Views & Analysis/ Views & Analysis/ Views and analysis Raising awareness about rare diseases Richard Staines alstrom syndrome, Cambridge Rare Disease Network, kay parkinson, rare disease, Rare diseases, RAREfest18 0 Comment A family tragedy has prompted Kay Parkinson, founder of the rare disease charity Alstrom Syndrome UK, to create Share X Raising awareness about rare diseases https://pharmaphorum.com/views-analysis-patients/awareness-rare-diseases/