Rare diseases

EMA finds possible link between mRNA COVID jabs and myocarditis

https://pharmaphorum.com/news/ema-backs-link-between-mrna-covid-jabs-and-myocarditis/

Rare disease: industry, patients and tech join forces on diagnosis

https://pharmaphorum.com/views-and-analysis/rare-disease-industry-patients-and-tech-join-forces-on-the-diagnostic-odyssey/

Why relationships are key in rare disease patient engagement

https://pharmaphorum.com/views-and-analysis/why-relationships-are-key-in-rare-disease-patient-engagement/

Growing up different and not knowing why: My experience of rare vascular disorder KTS

https://pharmaphorum.com/views-and-analysis/growing-up-different-and-not-knowing-why-my-experience-of-rare-vascular-disorder-kts/

World Orphan Drug Congress USA Virtual 2021

https://pharmaphorum.com/events/world-orphan-drug-congress-usa-virtual-2021/

Evrysdi has ‘real world impact’ on lives of babies with severe SMA, says Roche

https://pharmaphorum.com/news/evrysdi-has-real-world-impact-on-lives-of-babies-with-severe-sma-says-roche/

Alexion’s Camilla Harder Hartvig on making the impossible possible in rare disease

https://pharmaphorum.com/views-and-analysis/alexions-camilla-harder-hartvig-on-rare-diseases/

Making a big impact in small patient populations

https://pharmaphorum.com/partner-content/making-a-big-impact-in-small-patient-populations/

How accidental advocacy is amplifying the GM1 voice

https://pharmaphorum.com/views-and-analysis/rare-disease-advocacy-is-amplifying-the-gm1-voice/

1 2 3 4 5 >»

Close in 10 seconds

Pharmaphorum.com

Search