Patients The power of patient insights in shaping successful drug dev... The pharmaceutical industry is undergoing a major transformation, placing patients at the forefront of drug development like never before.
Patients A methodological approach in patient insights to discover th... When patients are diagnosed with a disease, they embark on a journey that is an emotional rollercoaster.
Views & Analysis Growing up different and not knowing why: My experience of r... Protracted diagnostic odysseys don’t only block access to rare disease treatments, they also leave people facing emotional turmoil all alone.
Patients The hidden danger of isolated congenital asplenia TEAM 4 Travis is an advocacy group with one objective – to ensure it doesn’t take an autopsy to diagnose isolated congenital asplenia.
Views & Analysis Focus on Rare: the invisible burden of rare diseases Emma Sutcliffe from NexGen Healthcare Communications looks at how patient insights can bring the invisible challenges of living with a rare condition into plain view.
Views & Analysis How accidental advocacy is amplifying the GM1 voice Rare disease families need to stand up and be counted if they want things to change said mum and advocate Christine Waggoner.
News PBM reform dropped in Congress' funding package Proposed reforms to the regulations for PBMs were dropped from the US Congress' end-of-year bill to provide funding to the federal government.
Digital Sponsored The AI effect in pharma commercial strategy: From data to re... Discover how AI is transforming the pharma commercial strategy. Unlock real-time insights & actions from data. Click here for more.