patient insights

Patients

The power of patient insights in shaping successful drug dev...

The pharmaceutical industry is undergoing a major transformation, placing patients at the forefront of drug development like never before.

Patients

A methodological approach in patient insights to discover th...

When patients are diagnosed with a disease, they embark on a journey that is an emotional rollercoaster.

Views & Analysis

Growing up different and not knowing why: My experience of r...

Protracted diagnostic odysseys don’t only block access to rare disease treatments, they also leave people facing emotional turmoil all alone.

Patients

The hidden danger of isolated congenital asplenia

TEAM 4 Travis is an advocacy group with one objective – to ensure it doesn’t take an autopsy to diagnose isolated congenital asplenia.

Views & Analysis

Focus on Rare: the invisible burden of rare diseases

Emma Sutcliffe from NexGen Healthcare Communications looks at how patient insights can bring the invisible challenges of living with a rare condition into plain view.

Views & Analysis

How accidental advocacy is amplifying the GM1 voice

Rare disease families need to stand up and be counted if they want things to change said mum and advocate Christine Waggoner.

The power of patient insights in shaping successful drug dev...

A methodological approach in patient insights to discover th...

Growing up different and not knowing why: My experience of r...

The hidden danger of isolated congenital asplenia

Focus on Rare: the invisible burden of rare diseases

How accidental advocacy is amplifying the GM1 voice

Neurogene drops high-dose arm in Rett study after death

Coming soon: The Life Sciences Industry Report 2025 – insigh...

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patient insights

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