patient groups

Views & Analysis

Bridging the gap between industry and charities: Enabling PP...

Public and patient involvement (PPI) in clinical research is the new normal, but bridging the gap between how industry and charities work isn’t always easy.

Views & Analysis

Why pharma isn’t collaborating with patient organisations as...

Patient centricity has rapidly gone from a fringe idea to a fundamental principle across the industry, but are pharma companies missing out on more impactful patient engagement through part

Views & Analysis

Building our own community for an ultra-rare disease

Bo Bigelow shares the story of his daughter Tess, who has an ultra-rare genetic disorder with only 51 known cases in the world.

Views & Analysis

Transparency creates fruitful pharma-patient group partnersh...

Collaboration between pharma and patient organisations can yield fantastic results – but conflict of interest concerns can stop such potential-filled partnerships getting off the ground.

Views & Analysis