Maximizing Consumer Engagement with People with Rare Disease


The life sciences industry has made proactive strides in recent years within rare disease. With more than 30 million people in the U.S. living with 7,000 individual conditions, according to the National Organization for Rare Disorders (NORD), the increased clinical attention and treatments in development are meaningful to a small, yet important, segment of the population.

In 2022 alone, more than half of the U.S. Food and Drug Administration’s novel drug approvals were for patients with rare diseases. As awareness grows and treatment becomes more readily available, it’s important for the industry to find ways to engage with the rare disease community to find the right treatment.

For pharma marketers who have decades of experience executing traditional marketing campaigns around prominent chronic concerns, like diabetes, cancer and asthma, building an effective consumer engagement campaign around a specific rare condition can be challenging.

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Health Union
5 September, 2023