corporate reputation, German patient group, patient perspective, patient voice, pharma reputation
0 Comment
A survey of 86 German patient groups suggests pharma’s reputation is improving in the country that has been wary of pharma in the past, with Amgen and Janssen leading the way.
DMD, Duchenne muscular dystrophy, patient perspective, patient voice, patients
0 Comment
Making sure everyone with DMD gets access to treatments and the ‘essential’ interventions that can make life worth living is key.
DMD, Duchenne muscular dystrophy, patient perspective, patient voice
0 Comment
DMD, Duchenne, Duchenne muscular dystrophy, patient centricity, patient perspective
0 Comment
Progress in health and social care in European countries is helping many boys with Duchenne muscular dystrophy (DMD) to extend their lives beyond what was once dreamed possible, and to take control of their lives as they grow up and become men.
eye disease, hereditary eye disease, LHON, LHON awareness, LHON Society, mitochondrial disease, patient perspective, patients, rare disease
0 Comment
eye disease, gene therapy, inherited disease, patient perspective, rare disease, Spark Therapeutics
0 Comment
US FDA expert committee’s ‘yes’ could pave the way for a new generation of gene therapies for rare inherited eye disorders.
Deep Dive, patient centricity, patient perspective, patients, Rare diseases
0 Comment
Benefitting from insights from focus groups with rare disease patients.
