patient organisations Archives -

New IFPMA and EFPIA guidance on use of social media by the pharmaceutical industry

mike.hammerton@pharmaphorum.com digital channels, EFPIA, HCOs, HCPs, IFPMA, medicines promotion, patient organisations, prescription-only medicines, Regulations, social media 0 Comment

On 28 September 2022, the international and European self-regulatory bodies for the research-based pharmaceutical industry (IFPMA, the International

New IFPMA and EFPIA guidance on use of social media by the pharmaceutical industry

https://pharmaphorum.com/views-and-analysis/new-ifpma-and-efpia-guidance-on-use-of-social-media-by-the-pharmaceutical-industry/

Patients/ Views & Analysis/ Views and analysis

New study reveals patients’ changing needs during COVID-19

mike.hammerton@pharmaphorum.com coronavirus, COVID-19, patient groups, patient organisations, Patients Association 0 Comment

New research from The Patients Association, supported through sponsorship provided by Novo Nordisk and ENGINE MHP, looks at

New study reveals patients’ changing needs during COVID-19

https://pharmaphorum.com/views-analysis-patients/new-study-reveals-patients-changing-needs-during-covid-19/

Patients/ Views & Analysis/ Views and analysis

Education as the solution to the rare disease ‘diagnostic odyssey’

Amanda Barrell patient groups, patient organisations, scleroderma 0 Comment

It took more than a year for Don Legere to receive a diagnosis of scleroderma, a rare disease

Education as the solution to the rare disease ‘diagnostic odyssey’

https://pharmaphorum.com/views-analysis-patients/education-as-the-solution-to-the-rare-disease-diagnostic-odyssey-scleroderma/

Digital/ Patients/ Views & Analysis/ Views & Analysis/ Views and analysis

BMS launches digital Advocacy Exchange for patient groups affected by COVID-19

George Underwood BMS, Bristol-Myers Squibb, coronavirus, COVID-19, Digital Health & COVID-19, Gryt Health, patient groups, patient organisations, Pharma’s Digital Response to COVID-19 0 Comment

Bristol Myers-Squibb and digital health firm GRYT Health have teamed up to develop an ‘Advocacy Exchange’ virtual platform

BMS launches digital Advocacy Exchange for patient groups affected by COVID-19

https://pharmaphorum.com/views-analysis-digital/bms-launches-digital-advocacy-exchange-for-patient-groups-affected-by-covid-19/

News/ News/ Patients

Industry and patient groups collaborate on new guidance for interaction

George Underwood comms, IAPO, IFPMA, patient groups, patient organisations 0 Comment

The International Federation of Pharmaceutical Manufacturers and Associations (IFPMA) and the International Alliance for Patients’ Associations (IAPO) have

Industry and patient groups collaborate on new guidance for interaction

https://pharmaphorum.com/news/industry-and-patient-groups-collaborate-on-new-guidance-for-interaction/

Views & Analysis/ Views and analysis

Why pharma isn’t collaborating with patient organisations as much as it should

George Underwood Accenture, patient centricity, patient engagement, patient groups, patient organisations 0 Comment

Patient centricity has rapidly gone from a fringe idea to a fundamental principle across the industry, but are

Why pharma isn’t collaborating with patient organisations as much as it should

https://pharmaphorum.com/views-and-analysis/why-pharma-isnt-collaborating-with-patient-organisations-as-much-as-it-should/

Market Access/ Partner content/ Press releases

Preliminary Attendee List Released for Orphan Drugs & Rare Diseases Conference

Maria Mandic drug development, orphan drugs, patient centricity, patient organisations, Rare diseases 0 Comment

Attendees Released for Orphan Drugs & Rare Diseases

Preliminary Attendee List Released for Orphan Drugs & Rare Diseases Conference

https://pharmaphorum.com/partner-content/preliminary-attendee-list-released-for-orphan-drugs-rare-diseases-conference/

Partner content/ Press releases/ R&D

How challenges like Brexit & insufficient patients hinder Rare Diseases research

Lyudmyla Durneva collaboration, Funding, orphan drugs, patient organisations, Rare diseases 0 Comment

Challenges facing Orphan Drugs & Rare Diseases Research

How challenges like Brexit & insufficient patients hinder Rare Diseases research

https://pharmaphorum.com/partner-content/how-challenges-like-brexit-insufficient-patients-hinder-rare-diseases-research/

Trending

patient organisations

Login