New study reveals patients’ changing needs during COVID-19New research from The Patients Association, supported through sponsorship provided by Novo Nordisk and ENGINE MHP, looks at Share XNew study reveals patients’ changing needs during COVID-19https://pharmaphorum.com/views-analysis-patients/new-study-reveals-patients-changing-needs-during-covid-19/
Education as the solution to the rare disease ‘diagnostic odyssey’It took more than a year for Don Legere to receive a diagnosis of scleroderma, a rare disease Share XEducation as the solution to the rare disease ‘diagnostic odyssey’https://pharmaphorum.com/views-analysis-patients/education-as-the-solution-to-the-rare-disease-diagnostic-odyssey-scleroderma/
BMS launches digital Advocacy Exchange for patient groups affected by COVID-19Bristol Myers-Squibb and digital health firm GRYT Health have teamed up to develop an ‘Advocacy Exchange’ virtual platform Share XBMS launches digital Advocacy Exchange for patient groups affected by COVID-19https://pharmaphorum.com/views-analysis-digital/bms-launches-digital-advocacy-exchange-for-patient-groups-affected-by-covid-19/
Industry and patient groups collaborate on new guidance for interactionThe International Federation of Pharmaceutical Manufacturers and Associations (IFPMA) and the International Alliance for Patients’ Associations (IAPO) have Share XIndustry and patient groups collaborate on new guidance for interactionhttps://pharmaphorum.com/news/industry-and-patient-groups-collaborate-on-new-guidance-for-interaction/
Call for mandatory disclosure of industry funding of patient groupsExperts have warned that few patient groups have formal policies governing corporate funding and financial transparency, despite widespread Share XCall for mandatory disclosure of industry funding of patient groupshttps://pharmaphorum.com/news/call-for-mandatory-disclosure-of-industry-funding-of-patient-groups/
Bridging the gap between industry and charities: Enabling PPI in researchPublic and patient involvement (PPI) in clinical research is the new normal, but bridging the gap between how Share XBridging the gap between industry and charities: Enabling PPI in researchhttps://pharmaphorum.com/views-analysis-patients/bridging-the-gap-between-industry-and-charities-enabling-ppi-in-research/
Why pharma isn’t collaborating with patient organisations as much as it shouldPatient centricity has rapidly gone from a fringe idea to a fundamental principle across the industry, but are Share XWhy pharma isn’t collaborating with patient organisations as much as it shouldhttps://pharmaphorum.com/views-and-analysis/why-pharma-isnt-collaborating-with-patient-organisations-as-much-as-it-should/
Building our own community for an ultra-rare diseaseBo Bigelow shares the story of his daughter Tess, who has an ultra-rare genetic disorder with only 51 Share XBuilding our own community for an ultra-rare diseasehttps://pharmaphorum.com/views-and-analysis/building-our-own-community-for-an-ultra-rare-disease/
Transparency creates fruitful pharma-patient group partnershipsCollaboration between pharma and patient organisations can yield fantastic results – but conflict of interest concerns can stop Share XTransparency creates fruitful pharma-patient group partnershipshttps://pharmaphorum.com/views-analysis-patients/transparency-creates-fruitful-pharma-patient-group-partnerships/
