Why relationships are key in rare disease patient engagementReal-world data is a vital part of rare disease drug development, but to get a true picture of Share XWhy relationships are key in rare disease patient engagementhttps://pharmaphorum.com/views-and-analysis/why-relationships-are-key-in-rare-disease-patient-engagement/
Not just COVID-19 vaccines: 5 things that cause blood clotsReports of COVID-19 vaccinations causing blood clots has caused alarm in the general population. However due to the Share XNot just COVID-19 vaccines: 5 things that cause blood clotshttps://pharmaphorum.com/views-and-analysis/5-things-that-cause-blood-clots/
Growing up different and not knowing why: My experience of rare vascular disorder KTSProtracted diagnostic odysseys don’t only block access to rare disease treatments, they also leave people facing emotional turmoil Share XGrowing up different and not knowing why: My experience of rare vascular disorder KTShttps://pharmaphorum.com/views-and-analysis/growing-up-different-and-not-knowing-why-my-experience-of-rare-vascular-disorder-kts/
Cytisinicline – the solution to stop smoking?Whether present in electronic or combustible cigarettes, nicotine is a highly addictive substance. Dr Cindy Jacobs, chief medical Share XCytisinicline – the solution to stop smoking?https://pharmaphorum.com/views-and-analysis/the-need-for-nicotine-vaping-cessation-therapies/
The power of communication: engaging diverse groups in healthcareHumans are diverse and communications to engage us need to be inclusive. It’s no longer about talking to Share XThe power of communication: engaging diverse groups in healthcarehttps://pharmaphorum.com/views-and-analysis/the-power-of-communication-engaging-diverse-groups-in-healthcare/
The hidden danger of isolated congenital aspleniaTEAM 4 Travis is an advocacy group with one objective – to ensure it doesn’t take an autopsy Share XThe hidden danger of isolated congenital aspleniahttps://pharmaphorum.com/patients/shining-a-light-on-the-hidden-danger-of-isolated-congenital-asplenia/
Patient involvement in trial design: looking to the futureCOVID-19 has transformed the way we think about patient participation in trial design – but there are still Share XPatient involvement in trial design: looking to the futurehttps://pharmaphorum.com/patients/patient-involvement-in-trial-design-looking-to-the-future/
How accidental advocacy is amplifying the GM1 voiceRare disease families need to stand up and be counted if they want things to change said mum Share XHow accidental advocacy is amplifying the GM1 voicehttps://pharmaphorum.com/views-and-analysis/rare-disease-advocacy-is-amplifying-the-gm1-voice/
Health at every size – making medicine weight inclusiveUK-based doctor, Dr Natasha Larmie is on a mission to make medicine weight inclusive. Inspired by the Health Share XHealth at every size – making medicine weight inclusivehttps://pharmaphorum.com/patients/health-at-every-size-making-medicine-weight-inclusive/
