Living with LHON: Support and friendship fights fear and isolationWhen someone is told they have a rare disease – particularly one like LHON that strips people of Share XLiving with LHON: Support and friendship fights fear and isolationhttps://pharmaphorum.com/disease-spotlight/living-with-lhon-support-and-friendship-fights-fear-and-isolation/
Diagnostic de la NOHL : sensibiliser le public à la souffrance invisible des patientsMaryse Roger a vécu de près la neuropathie optique héréditaire de Leber (NOHL). Elle a d’abord aidé ses Share XDiagnostic de la NOHL : sensibiliser le public à la souffrance invisible des patientshttps://pharmaphorum.com/spotlight/diagnostic-de-la-nohl-sensibiliser-le-public-a-la-souffrance-invisible-des-patients/
Living with LHON: Adapting to sight loss at 15 years oldWhen faced with a devastating diagnosis, a family has two choices – to give up or make it Share XLiving with LHON: Adapting to sight loss at 15 years oldhttps://pharmaphorum.com/disease-spotlight/living-with-lhon-adapting-to-sight-loss-at-15-years-old/
Drawing strength from growing up with LHONWith a successful music career already in the bag, 24-year-old Fredrik Guzmán Lindemark is now making his mark Share XDrawing strength from growing up with LHONhttps://pharmaphorum.com/disease-spotlight/drawing-strength-from-growing-up-with-lhon/
Wegweiser für ein Leben mit LHONWegweiser für ein Leben mit LHON Jeder Patient geht seinen eigenen Weg durchs Leben und versucht, mit den Share XWegweiser für ein Leben mit LHONhttps://pharmaphorum.com/disease-spotlight/lhon-main/wegweiser-fur-ein-leben-mit-lhon/
Établir la feuille de route pour vivre avec la NOHLÉtablir la feuille de route pour vivre avec la NOHL Chaque patient doit suivre son propre cheminement, en Share XÉtablir la feuille de route pour vivre avec la NOHLhttps://pharmaphorum.com/disease-spotlight/lhon-main/etablir-la-feuille-de-route-pour-vivre-avec-la-nohl/
Pacientes con NOHL: cómo encontrar la hoja de ruta para la vidaCada paciente se enfrenta a su propio viaje a lo largo la vida e irá adquiriendo conocimientos sobre Share XPacientes con NOHL: cómo encontrar la hoja de ruta para la vidahttps://pharmaphorum.com/disease-spotlight/lhon-main/pacientes-con-nohl-como-encontrar-la-hoja-de-ruta-para-la-vida/
New support group will help families adapt to LHONPersonal experience of helping her son juggle sight loss and adolescence means Francesca Müeller understands all too well Share XNew support group will help families adapt to LHONhttps://pharmaphorum.com/disease-spotlight/lhon-main/new-support-group-will-help-families-adapt-to-lhon/
Adaptations and positivity are key to living in the light with LHON sight lossIt took 30 years for Krister Inde to find out the visual impairment that developed when he was Share XAdaptations and positivity are key to living in the light with LHON sight losshttps://pharmaphorum.com/disease-spotlight/adaptions-and-positivity-are-key-to-living-in-the-light-with-lhon-sight-loss/
