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DMD campaigners: Advocating for change

DMD campaigners: Advocating for change

The internet and social media are often heralded as a panacea for rare disease patients and their carers

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DMD campaigners: Advocating for change

https://pharmaphorum.com/disease-spotlight/dmd-main/dmd-campaigners-advocating-change/

Parenting as a DMD patient

Parenting as a DMD patient

Parenting as a DMD patient The sleepless nights and steep learning curve that will be familiar to any

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Parenting as a DMD patient

https://pharmaphorum.com/views-analysis-digital/parenting-as-a-dmd-patient/

He ain’t heavy – learning about a sibling’s DMD diagnosis

He ain’t heavy – learning about a sibling’s DMD diagnosis

It’s common for patients to want to know more about what’s causing them to be ill and their

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He ain’t heavy – learning about a sibling’s DMD diagnosis

https://pharmaphorum.com/views-and-analysis/learning-sibling-dmd-diagnosis/

Living with DMD: Ensuring equal access to quality of life

Living with DMD: Ensuring equal access to quality of life

Making sure everyone with DMD gets access to treatments and the ‘essential’ interventions that can make life worth living is key.

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Living with DMD: Ensuring equal access to quality of life

https://pharmaphorum.com/views-and-analysis/living-with-dmd-ensuring-equal-access-to-quality-of-life/

Lights, camera, action – DMD and chasing your dreams

Lights, camera, action – DMD and chasing your dreams

People with a DMD diagnosis must believe this isn’t a sign to roll the end credits on their

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Lights, camera, action – DMD and chasing your dreams

https://pharmaphorum.com/views-and-analysis/lights-camera-action-dmd-and-chasing-your-dreams/

Living with DMD: Inspiring each other’s futures

Living with DMD: Inspiring each other’s futures

Diagnosed with Duchenne muscular dystrophy (DMD) at three years old, Dr Jon Hastie grew up never thinking about

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Living with DMD: Inspiring each other’s futures

https://pharmaphorum.com/views-and-analysis/living-with-dmd-inspiring-each-others-futures/

Can people with Duchenne be in charge of their own lives?

Can people with Duchenne be in charge of their own lives?

Progress in health and social care in European countries is helping many boys with Duchenne muscular dystrophy (DMD) to extend their lives beyond what was once dreamed possible, and to take control of their lives as they grow up and become men.

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Can people with Duchenne be in charge of their own lives?

https://pharmaphorum.com/views-and-analysis/can-people-with-duchenne-be-in-charge-of-their-own-lives/

Duchenne’s disease: A New Hope

Duchenne’s disease: A New Hope

Rare diseases, exceptional people: Filippo Buccella has battled for 25 years to improve care for children with Duchenne

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Duchenne’s disease: A New Hope

https://pharmaphorum.com/views-and-analysis/duchennes-disease-dmd-a-new-hope/

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