Living with LHON: Individual struggles, common challengesBeing diagnosed with a rare disease is often a bolt from the blue, and while each person’s journey Share XLiving with LHON: Individual struggles, common challengeshttps://pharmaphorum.com/disease-spotlight/living-with-lhon-individual-struggles-common-challenges/
Living with LHON: Sight loss won’t stop James from seeing the worldWhen he was first told he had LHON, a rare genetic disease that would rob him of his Share XLiving with LHON: Sight loss won’t stop James from seeing the worldhttps://pharmaphorum.com/views-analysis-patients/living-with-lhon-sight-loss-wont-stop-james-from-seeing-the-world/
Living with LHON: Support and friendship fights fear and isolationWhen someone is told they have a rare disease – particularly one like LHON that strips people of Share XLiving with LHON: Support and friendship fights fear and isolationhttps://pharmaphorum.com/disease-spotlight/living-with-lhon-support-and-friendship-fights-fear-and-isolation/
Diagnostic de la NOHL : sensibiliser le public à la souffrance invisible des patientsMaryse Roger a vécu de près la neuropathie optique héréditaire de Leber (NOHL). Elle a d’abord aidé ses Share XDiagnostic de la NOHL : sensibiliser le public à la souffrance invisible des patientshttps://pharmaphorum.com/spotlight/diagnostic-de-la-nohl-sensibiliser-le-public-a-la-souffrance-invisible-des-patients/
Living with LHON: Adapting to sight loss at 15 years oldWhen faced with a devastating diagnosis, a family has two choices – to give up or make it Share XLiving with LHON: Adapting to sight loss at 15 years oldhttps://pharmaphorum.com/disease-spotlight/living-with-lhon-adapting-to-sight-loss-at-15-years-old/
Drawing strength from growing up with LHONWith a successful music career already in the bag, 24-year-old Fredrik Guzmán Lindemark is now making his mark Share XDrawing strength from growing up with LHONhttps://pharmaphorum.com/disease-spotlight/drawing-strength-from-growing-up-with-lhon/
Curing DMD: Travelling together to find a meaningful destinationFor many years, Duchenne muscular dystrophy (DMD) was something of a forgotten disease. The boys, and some girls, Share XCuring DMD: Travelling together to find a meaningful destinationhttps://pharmaphorum.com/disease-spotlight/dmd-main/curing-dmd-travelling-together-to-find-a-meaningful-destination/
Wegweiser für ein Leben mit LHONWegweiser für ein Leben mit LHON Jeder Patient geht seinen eigenen Weg durchs Leben und versucht, mit den Share XWegweiser für ein Leben mit LHONhttps://pharmaphorum.com/disease-spotlight/lhon-main/wegweiser-fur-ein-leben-mit-lhon/
Établir la feuille de route pour vivre avec la NOHLÉtablir la feuille de route pour vivre avec la NOHL Chaque patient doit suivre son propre cheminement, en Share XÉtablir la feuille de route pour vivre avec la NOHLhttps://pharmaphorum.com/disease-spotlight/lhon-main/etablir-la-feuille-de-route-pour-vivre-avec-la-nohl/
