Drawing strength from growing up with LHONWith a successful music career already in the bag, 24-year-old Fredrik Guzmán Lindemark is now making his mark Share XDrawing strength from growing up with LHONhttps://pharmaphorum.com/disease-spotlight/drawing-strength-from-growing-up-with-lhon/
Curing DMD: Travelling together to find a meaningful destinationFor many years, Duchenne muscular dystrophy (DMD) was something of a forgotten disease. The boys, and some girls, Share XCuring DMD: Travelling together to find a meaningful destinationhttps://pharmaphorum.com/disease-spotlight/dmd-main/curing-dmd-travelling-together-to-find-a-meaningful-destination/
Wegweiser für ein Leben mit LHONWegweiser für ein Leben mit LHON Jeder Patient geht seinen eigenen Weg durchs Leben und versucht, mit den Share XWegweiser für ein Leben mit LHONhttps://pharmaphorum.com/disease-spotlight/lhon-main/wegweiser-fur-ein-leben-mit-lhon/
Établir la feuille de route pour vivre avec la NOHLÉtablir la feuille de route pour vivre avec la NOHL Chaque patient doit suivre son propre cheminement, en Share XÉtablir la feuille de route pour vivre avec la NOHLhttps://pharmaphorum.com/disease-spotlight/lhon-main/etablir-la-feuille-de-route-pour-vivre-avec-la-nohl/
Pacientes con NOHL: cómo encontrar la hoja de ruta para la vidaCada paciente se enfrenta a su propio viaje a lo largo la vida e irá adquiriendo conocimientos sobre Share XPacientes con NOHL: cómo encontrar la hoja de ruta para la vidahttps://pharmaphorum.com/disease-spotlight/lhon-main/pacientes-con-nohl-como-encontrar-la-hoja-de-ruta-para-la-vida/
New support group will help families adapt to LHONPersonal experience of helping her son juggle sight loss and adolescence means Francesca Müeller understands all too well Share XNew support group will help families adapt to LHONhttps://pharmaphorum.com/disease-spotlight/lhon-main/new-support-group-will-help-families-adapt-to-lhon/
Adaptations and positivity are key to living in the light with LHON sight lossIt took 30 years for Krister Inde to find out the visual impairment that developed when he was Share XAdaptations and positivity are key to living in the light with LHON sight losshttps://pharmaphorum.com/disease-spotlight/adaptions-and-positivity-are-key-to-living-in-the-light-with-lhon-sight-loss/
Increase collaboration to widen access to DMD drugs, trials and careWhen it comes to fighting a rare disease like Duchenne muscular dystrophy (DMD), it’s a matter of strength Share XIncrease collaboration to widen access to DMD drugs, trials and carehttps://pharmaphorum.com/disease-spotlight/increase-collaboration-to-widen-access-to-dmd-drugs-trials-and-care/
Living with LHON: Blindness doesn’t mean losing sight of your dreamsLosing your sight is every bookworm’s worst nightmare, but former English teacher Paula Morandi has not let her Share XLiving with LHON: Blindness doesn’t mean losing sight of your dreamshttps://pharmaphorum.com/disease-spotlight/living-with-lhon-blindness-doesnt-mean-losing-sight-of-your-dreams/
