Strength in numbers: Because having a rare disease isn’t rareRare doesn’t mean insignificant – in fact more people live with a rare disease than with cancer and Share XStrength in numbers: Because having a rare disease isn’t rarehttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/global-genes-rare-diseases/
Fair market value for patientsFair Market Value (FMV) payment is not a new concept to the life science industry. It has for Share XFair market value for patientshttps://pharmaphorum.com/views-analysis-patients/fair-market-value-for-patients/
The patient perspective on advocacyGrowing up with the shadow of Huntington’s disease (HD) means Seth Rotberg understands the importance of peer support Share XThe patient perspective on advocacyhttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/inspire-patient-advocacy-seth-rotberg/
The Evolution of Scenario Planning and Simulation to Address Modern Market and Landscape ChallengesIntroduction Having worked in the field of future decision making and strategy for many years our team have Share XThe Evolution of Scenario Planning and Simulation to Address Modern Market and Landscape Challengeshttps://pharmaphorum.com/views-analysis-sales-marketing/the-evolution-of-scenario-planning-and-simulation-to-address-modern-market-and-landscape-challenges/
How pharma can support doctors who treat rare diseasesWhere do doctors see patients with rare diseases, how do they keep up with treatment advances and what Share XHow pharma can support doctors who treat rare diseaseshttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/orphan-drug-marketing-medpanel/
Living with LHON: Adapting to sight loss at 15 years oldWhen faced with a devastating diagnosis, a family has two choices – to give up or make it Share XLiving with LHON: Adapting to sight loss at 15 years oldhttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/living-lhon-sight-loss-santhera/
Account ExecutiveInterested in working for a fast growing communication agency with a blue chip client roster? We have an Share XAccount Executivehttps://pharmaphorum.com/jobs/account-executive/
A lifeline for rare disease patientsFor more than 25 years Alexion has been blazing a trail in rare diseases, bringing a series of Share XA lifeline for rare disease patientshttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/alexion-sean-richardson-charles-de-wet/
Realising the potential of wearable techSpire Health, a US-based continuous respiration sensing and high-adherence ambulatory monitoring healthcare company, is poised to revolutionise the Share XRealising the potential of wearable techhttps://deep-dive.pharmaphorum.com/magazine/pharma-research-rare-diseases/spire-health-clinical-trial-wearables/
