Working together to embed public involvement in researchAmanda Barrell speaks to the ABPI deputy chief scientific officer Sheuli Porkess and the NIHR’s Simon Denegri at the Share XWorking together to embed public involvement in researchhttps://pharmaphorum.com/views-analysis-patients/abpi-working-together-to-embed-public-involvement-in-research/
Living with LHON: Sight loss won’t stop James from seeing the worldWhen he was first told he had LHON, a rare genetic disease that would rob him of his Share XLiving with LHON: Sight loss won’t stop James from seeing the worldhttps://pharmaphorum.com/views-analysis-patients/living-with-lhon-sight-loss-wont-stop-james-from-seeing-the-world/
Embracing next generation patient centricityPharma has largely accepted the value and importance of patient centricity – now it’s time to scale it Share XEmbracing next generation patient centricityhttps://pharmaphorum.com/patients/embracing-next-generation-patient-centricity/
Addressing MS’ two-tier healthcare system is about ‘social justice’NICE has reversed its decision not to approve a new drug that offers hope to thousands of people Share XAddressing MS’ two-tier healthcare system is about ‘social justice’https://pharmaphorum.com/views-analysis-patients/ms-two-tier-healthcare-system/
Med tech and adherence: modern ways to tackle an age-old problemMedication adherence is a long-standing problem, but the dawning of the patient-centric age is opening up new ways Share XMed tech and adherence: modern ways to tackle an age-old problemhttps://pharmaphorum.com/views-analysis-digital/med-tech-adherence/
Are your internal processes drowning out the patient voice?Greater patient involvement is among the stated aims of the ABPI, so why do companies up and down Share XAre your internal processes drowning out the patient voice?https://pharmaphorum.com/views-analysis-patients/internal-processes-drowning-patient-voice/
Transparency creates fruitful pharma-patient group partnershipsCollaboration between pharma and patient organisations can yield fantastic results – but conflict of interest concerns can stop Share XTransparency creates fruitful pharma-patient group partnershipshttps://pharmaphorum.com/views-analysis-patients/transparency-creates-fruitful-pharma-patient-group-partnerships/
Boosting clinical trial recruitment through patient engagementOver the years, many hands have been wrung over clinical trial recruitment – low participation rates are common Share XBoosting clinical trial recruitment through patient engagementhttps://pharmaphorum.com/views-analysis-patients/boosting-clinical-trial-recruitment-through-patient-engagement/
Living with LHON: Support and friendship fights fear and isolationWhen someone is told they have a rare disease – particularly one like LHON that strips people of Share XLiving with LHON: Support and friendship fights fear and isolationhttps://pharmaphorum.com/disease-spotlight/living-with-lhon-support-and-friendship-fights-fear-and-isolation/
